We are still here!

Wow I have been THE worst blog person yet! I can't believe it has been over 3 months!

Well, Koda has been in Maintenance (going in for chemo one time a month, spinal tap and chemo once every three months, chemo pill at home every day) for three months now! It has been very easy for me to let life seem normal again, like we didn't REALLY have a child with cancer.... Until his very first fever last week... that was heart breaking. He just layed on the couch all day and said he felt very yucky. His fever reached 101.5, we took him to the ER and if his ANC was 500 or below we would be admitted to the hospital until 24 hours after the fever had cleared. Luckily he was at 700 but we had to go back in to clinic the following day to check on him. His ANC had dropped from 2000 to 700 in 4 days from him getting sick, scary! They pretty much just gave him an antibiotic through his port just to cover all the bases. We never figured out what he had but it was gone within 2 days! This was a huge wake up call for us... our life is NOT normal, this was NOT just a nightmare, and we still have to be super careful!

We had to go get a blood draw again today to see if his ANC has gone back up yet (they had us stop his chemo pills until it got back up so if he was very sick he could somewhat fight it) and we had to go into the local hospital so they had to draw it from a vein in his arm and this little super kid did not even flinch, squirm or cry. This truly shows how strong and amazing these kids are and how much pain they endure!

It has been so great to see Koda's hair again and we are getting to a point where we can actually spike it and do it all studly!

So all in all it has been a decent three months, maintenance is great but still not what you want to see your child going through. Still the sick, laying on the couch days, but it's better than it was the previous 6 months! We feel endlessly blessed and wish we could thank every single person we do and don't know for all they have done for us. THANK YOU ALL!

Just for fun...

For those of you far away that rarely or haven't seen this princess... Gracelyn 4 months old... covered in rice cereal! Her first time attempting to eat it